Showing posts with label healthcare. Show all posts
Showing posts with label healthcare. Show all posts

Friday, December 21, 2012

Looking Back on 2012

A phone call with a dear friend has prompted me to (finally!) post an update on my blog.  As I explained to her, I had needed to take a break from the blogging in order to focus completely on my healing, and it was worthwhile.  Looking back at my last post, I realize a lot has changed since April.  As of today, I would say that I have finally broken the endless cycle that I was in for over five years.  Not that I am completely without problems, but when I do struggle with my symptoms, I am able to implement changes to my diet, routine, or add a medication and my body will respond and get back to a normal point.  In the past, once I started to "crash," nothing could stop the derailing train. 

Much of my healing has come through the move to Florida.  I believe that for me, reducing the exposure to extreme weather changes (particularly the cold), has allowed my body to recover.  The clean air we experienced while living on the Gulf Coast was amazing for my nasal passages, as were the frequent trips to the beach and swimming in both the ocean and our saltwater pool.  I rested a lot.  I limited my social commitments to almost nil, and slept a good deal more than is recommended.  I struggled with severe fatigue until late May or early June, when I connected with an amazing woman from our church who counseled me in both nutrition and emotional wellness.  While I knew my illness had a connection to stress, I never knew how much it played a role in my health issues until Michele gave me some much-needed insight.  With her help, I went on a dietary detox and found my energy returning within days.  Days led to weeks of living without the fatigue, even when I gradually returned to a more normal diet.  I fully believe that Michele helped guide me to both physical and spiritual healing, and that although it took almost an entire year, by the time we left Cape Coral I finally had found the complete healing that we had come for.

By that time, we knew we wanted to stay in Florida but decided to settle down closer to a city.  We had to trek back up North to close on the sale of our home there, while still not knowing exactly where we wanted to live in Florida.  Moving out of our rental home into a storage unit three hours away was not an easy task, but we were glad we did that when, a few weeks later, I experienced the worst asthma attack of my life while staying in PA.  It was a day of high heat and humidity, worse than any I had experienced in Southwest Florida, and, combined with what I believe is my body's sensitivity to the conditions of the local environment in that region, I had a severe reaction.  Unfortunately, I was back on the couch, without energy and without a plan of how to get back to Florida.  Thankfully, God once again was with us as we looked into renting an apartment in the area where we thought we wanted to settle, and our plans once again came together rather seamlessly.   Despite planning to spend an indefinite period of time visiting with our friends in our old community, we left in rather a haste as I was still recovering.

We now are back in Florida, in a beautiful, friendly town where we met many lovely families and friends. It took several months of house-hunting while homeschooling the three children (and Jon working) out of an apartment before we finally landed back into a home of our own on October 24, 2012.  Jon took another trip to PA in November to get the rest of our furniture and belongings, so that we are finally truly settled into our new home. 

It took a year and a half of living a gypsie's life of wandering, but by the mercy of God we are home again, at last.  Truly we have so much to be thankful for as we look back on 2012.  At the beginning of this year much of our life was uncertain: where we would live permanently, whether my health would ever improve, and many other questions that lingered.  Now we can look back and praise God for his wonderous work in our life as a family.  There are still a lot of questions and aspects of our life that remain uncertain.  Even my health being strong is not a guarantee. 

Over the course of the year I was given a more concrete diagnosis and explation for my ongoing sinus struggles:  Samter's Triad.  Another name for it is AERD (Aspirin-Exacerbated Respiratory Disorder).  In fact, this blog helped to connect me with a group of individuals suffering from the same cluster of symptoms that can overtake one's life.  I am thankful that for the moment mine are under control, but it is something that I will live with likely for the rest of my life.  I have to be very careful what I eat and how I spend my energy, but no where is it near the point where it was even six months ago.  I am back to running again, which feels amazing (last spring I tried to go from walking to running but it would wipe me out for days; now I have no reaction other than the normal soreness if I push too hard).  I can enjoy foods I love, in moderation and while listening very carefully to my body for signs that I am having a reaction.  Most of all, I am so thankful for the energy that I have again, which allows me to enjoy my kids on a daily basis, and not just from the perspective of the couch!  It is such a priviledge that I have this year to be teaching them at home, with the help of an amazing homeschool community that has become like family to us.

I pray that 2013 continues to bring us good health.  But I also pray that I will continue to be challenged enough by my circumstances to remember to put my faith--and my trust, my strength, my very self--into the hands of our Lord. 

"O God, you are my God, earnestly I seek you;...
I have seen you in the sanctuary and beheld your power and your glory.
Because your love is better than life, my lips will glorify you."
Psalm 63: 1-3

Saturday, June 18, 2011

Poked and Prodded

My company decided two years ago to put healthcare "in the hands of employees," which means I am now my own plan admin.  Thanks a lot.  If anything, it is interesting to see how much healthcare costs us and what Melissa has been dealing with the past three years.  Aetna has tons of data on their website and looking at our family's "Health History Report"  the difference between the two of us is incredible.  I always tell her that the data never lies...

Medical "service" comparison between the two of us:


Yes, 145 medical services versus 21 over 3 years (and this does not include the first year of infections and ENT visits, or her initial surgery in 2008)!
  
Medical services include all doctor visits, procedures at visits, blood tests, flu shots, CTs, etc .  For me it was poison ivy last year, 1 sinus infection this year, and some general doctor visits.

Just to get an idea of what the amount of testing, visits, and procedures is like for someone with chronic sinusitus :

1
3/11/2009
OFFICE VISIT
2
3/26/2009
FIBERSCOPIC LARYNGOSCOPY
3
3/26/2009
OFFICE VISIT
4
4/21/2009
OFFICE VISIT
5
4/22/2009
NASAL ENDOSCOPY
6
4/22/2009
OFFICE VISIT
7
5/7/2009
NASAL ENDOSCOPY, SURGICAL;93
8
5/7/2009
ENDOSCOPY, MAXILLARY SINUS
9
5/7/2009
SINUS SURGICAL ENDOSCOPY
10
5/7/2009
NASAL/SINUS ENDOSCOPY-SURG
11
5/7/2009
MISCELLANEOUS SERVICES
12
5/7/2009
CAT SCAN OF FACE, JAW
13
5/7/2009
3D RENDERING WITH INTERPRETA
14
5/7/2009
MEDICAL SERVICES
15
5/7/2009
DECALCIFY TISSUE
16
5/7/2009
INTRODUCER/SHEATH, GUIDING
17
5/7/2009
MORPHIN SULF UPTO 10MG/192MX
18
5/7/2009
ONDANSETRON HCL PER 1MG/32MX
19
5/7/2009
PROMETHAZ HCL UP TO 50MG/1MX
20
5/7/2009
METOCLOPRA HCL UPTO 10MG/4MX
21
5/7/2009
NORMAL SALINE 1000CC/1 MX
22
5/7/2009
RINGR LACT UPTO 1000CC/1.5MX
23
5/7/2009
PHARMACY
24
5/7/2009
MED-SUR SUPPLIES
25
5/7/2009
STERILE SUPPLY
26
5/7/2009
LABORATORY
27
5/7/2009
PATHOLOGY LAB
28
5/7/2009
CT SCAN
29
5/7/2009
CT SCAN/OTHER
30
5/7/2009
OR SERVICES
31
5/7/2009
ANESTHESIA
32
5/7/2009
DRUGS/DETAIL CODE
33
5/7/2009
RECOVERY ROOM
34
5/7/2009
NASAL ENDOSCOPY, SURGICAL;93
35
5/7/2009
ENDOSCOPY, MAXILLARY SINUS
36
5/7/2009
SINUS SURGICAL ENDOSCOPY
37
5/7/2009
NASAL/SINUS ENDOSCOPY-SURG
38
5/7/2009
MISCELLANEOUS SERVICES
39
5/8/2009
NORMAL SALINE 1000CC/1 MX
40
5/8/2009
DRUGS/DETAIL CODE
41
5/15/2009
BASAL/SINUS ENDOSCOPY-SURGIC
42
5/15/2009
OFFICE VISIT
43
5/22/2009
BASAL/SINUS ENDOSCOPY-SURGIC
44
5/22/2009
OFFICE VISIT
45
5/29/2009
BASAL/SINUS ENDOSCOPY-SURGIC
46
5/29/2009
OFFICE VISIT
47
6/5/2009
NASAL ENDOSCOPY
48
6/5/2009
OFFICE VISIT
49
7/17/2009
NASAL ENDOSCOPY
50
7/17/2009
OFFICE VISIT
51
8/20/2009
ASSAY, IGA/IGD/IGG/IGM EACH
52
8/20/2009
IGG 1,2,3 OR 4, EACH
53
8/20/2009
IMMUNOASSAY, NONANTIBODY
54
8/20/2009
OFFICE VISIT
55
9/2/2009
FIBERSCOPIC LARYNGOSCOPY
56
9/2/2009
OFFICE VISIT
57
10/2/2009
NASAL ENDOSCOPY
58
10/2/2009
OFFICE VISIT
59
11/13/2009
NASAL ENDOSCOPY
60
11/13/2009
OFFICE VISIT
61
12/16/2009
 AMP PROBE
62
12/16/2009
OFFICE VISIT
63
12/16/2009
PREV VISIT, EST, AGE 18-39
64
12/29/2009
OFFICE VISIT
65
12/31/2009
LIPID PROFILE
66
12/31/2009
HEPATIC FUNCTION PANEL
67
12/31/2009
RIA ASSAY, TRUE THYROXINE
68
12/31/2009
ASSAY THYROID STIM HORMONE
69
1/20/2010
OFFICE VISIT
70
1/20/2010
NASAL ENDOSCOPY
71
2/16/2010
OFFICE VISIT
72
2/19/2010
OFFICE VISIT
73
2/19/2010
FIBERSCOPIC LARYNGOSCOPY
74
3/8/2010
RIA ASSAY, TRUE THYROXINE
75
3/8/2010
ASSAY THYROID STIM HORMONE
76
3/8/2010
ASSAY TRYROID (T-3 OR T-4)
77
3/25/2010
COMPREHEN METABOLIC PANEL
78
3/25/2010
AUTOMAT HEMOGRAM-COMPLET DIF
79
3/25/2010
RBC SED RATE, AUTO
80
3/25/2010
LYME DISEASE ANTIBODY
81
3/25/2010
PREV VISIT, EST, AGE 18-39
82
4/26/2010
OFFICE VISIT
83
6/28/2010
OFFICE VISIT
84
6/28/2010
EVALUATION OF WHEEZING
85
9/29/2010
ALLERGY SKIN TEST
86
9/29/2010
OFFICE VISIT
87
10/20/2010
OFFICE VISIT
88
10/20/2010
NASAL ENDOSCOPY
89
11/1/2010
CONSULTATIONS
90
11/26/2010
CULT BACT;NO URINE/BLD/STOOL
91
11/26/2010
OFFICE VISIT
92
12/6/2010
FLU VIRUS VACC-SPLIT 3 YR &
93
12/6/2010
FLU VIRUS VACC-SPLIT 3 YR &
94
12/6/2010
ADMIN INFLUENZA VIRUS VAC
95
12/6/2010
ADMIN INFLUENZA VIRUS VAC
96
12/10/2010
OFFICE VISIT
97
12/10/2010
NASAL ENDOSCOPY
98
12/13/2010
UPPER GI ENDOSCOPY,DIAGNOSIS
99
12/13/2010
UPPER GI ENDOSCOPY,DIAGNOSIS
100
12/13/2010
AMBUL SUR
101
12/29/2010
OFFICE VISIT
102
1/3/2011
ASSAY, IGA/IGD/IGG/IGM EACH
103
1/3/2011
ASSAY OF IGE
104
1/3/2011
ANTINUCLEAR ANTIBODIES, RIA
105
1/10/2011
PREV VISIT, EST, AGE 18-39
106
1/19/2011
CONSULTATIONS
107
1/25/2011
ASSAY THYROID STIM HORMONE
108
1/25/2011
MICROSOMAL ANTIBODY, RIA
109
1/31/2011
OFFICE VISIT
110
2/17/2011
OFFICE VISIT
111
2/23/2011
OFFICE VISIT
112
2/23/2011
NASAL ENDOSCOPY
113
3/11/2011
CAT SCAN OF FACE, JAW
114
3/11/2011
3D RENDERING WITH INTERPRETA
115
3/11/2011
CT SCAN
116
3/11/2011
CT SCAN/OTHER
117
3/25/2011
OFFICE VISIT
118
3/25/2011
NASAL ENDOSCOPY
119
4/14/2011
OFFICE VISIT
120
5/16/2011
ANESTHESIA
121
5/16/2011
COLLECTION OF VENOUS BLOOD
122
5/16/2011
METABOLIC PANEL TOTAL CA
123
5/16/2011
MEDICAL SERVICES
124
5/16/2011
HEMO/PLATELET CNT-AUTOMATED
125
5/16/2011
DECALCIFY TISSUE
126
5/16/2011
LABORATORY
127
5/16/2011
LAB/HEMATOLOGY
128
5/16/2011
PATHOLOGY LAB
129
5/16/2011
NASAL ENDOSCOPY, SURGICAL;93
130
5/16/2011
ENDOSCOPY, MAXILLARY SINUS
131
5/16/2011
SINUS SURGICAL ENDOSCOPY
132
5/16/2011
NASAL/SINUS ENDOSCOPY-SURG
133
5/16/2011
NASAL ENDOSCOPY, SURGICAL;93
134
5/16/2011
SCAN PROC CRANIAL EXTRA
135
5/16/2011
INTRODUCER/SHEATH, GUIDING
136
5/16/2011
ADRENALIN EPINEPHRINE INJECT
137
5/16/2011
RINGR LACT UPTO 1000CC/1.5MX
138
5/16/2011
PHARMACY
139
5/16/2011
MED-SUR SUPPLIES
140
5/16/2011
SUPPLY/IMPLANTS
141
5/16/2011
OR SERVICES
142
5/16/2011
DRUGS/DETAIL CODE
143
5/16/2011
RECOVERY ROOM
144
6/8/2011
OFFICE VISIT
145
6/8/2011
NASAL ENDOSCOPY
 

'nuff said.